There is not enough awareness about many rare illnesses, even though there are an estimated 350 million rare disease patients worldwide! This infographic from Global Genes provides many facts about rare disease as a whole. #CareAboutRare

via World Rare Disease Day 2017: Infographic — Finding Life’s Silver Sun


So many of us fighting rare disease often struggle to get our heads wrapped around it. If I’m being honest I completely forgot about this. Honestly, it’s been the longest week but it’s only Tuesday so obviously I’m not feeling well.

But in honour of myself and many others with rare disease please spread the message and let everyone know. Alone we are rare but together we are strong.


Until next time 🙂



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